Adam and Grant's Blog

Wednesday, September 06, 2006

Wednesday AM - Last night we visited both guys. The way my blog is going, it seems the sickest kid gets the most press. So today that will be Grant. First, some good news. As with Adam, the ultrasound for brain bleeds came back negative for him also. This was one of the premie risks the doctors worried about, and it's good to have this behind us. (That is, I think it's behind us.) We spoke with the neonatologist last night, and they have found some bacteria in his blood which they are now trying to identify. As they narrow down the strain, they can reduce the number and amount of antibiotics. She believes the bacteria is coming from his intestinal tract, but there is no perforation. Apparently when the intestine swells and the wall becomes thin, the bacteria is able to pass through the wall, into the abdominal cavity and into the bloodstream. He's still lethargic but was moving a little bit more last night. Now that he's being still (not necessarily a good thing), the difference in size between he and Adam is fairly striking. Grant is long and lanky, and Adam is more of a fire plug, a very skinny fire plug.

Speaking of Adam, he continues to do well despite his gastrointestinal and his cardiac complications. He's starting to move around and complaing when he gets a bath like he did before his surgery. We are allowed to hold him once per day and he will open his eyes to look at us. He has a good grip around our pinkie (for a 2 1/2 lb baby), and he's starting to enjoy his pacifier.

One thing that's rather frustrating with both kids is trying to take their pictures inside the isolettes. If you've ever tried to take a picture of someone behind a window or piece of plexiglass, that's what it's like. Both boys are changing every day, but it's hard to document with pictures when we can't get them out of their condo. Oh well, just another parental complaint. As I said before the isolette is a promotion so we'll just deal with it.

It seems our kids want to be noticed as being "not typical" with regard to the medical issues they present. Every time we speak to one of the neonatologists about a new challenge, they always say, "This is very atypical." It's very atypical that both twins would have gastrointestinal problems, it's very atypical to have such a large hole in the ventricular septum, and so on. So we've asked the doctors to speak with our guys and tell them there is nothing special or great about being "atypical". We are ready to join the ranks of the typical.

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